Custom Search

Philippians 1:6

For I am confident of this very thing, that He who began a good work in you will perfect it until the day of Christ Jesus.

Thursday, November 13, 2008

Alli update Thurs noon

Alli's EEG did not show any immediate malfunctioning in the brain. However, Alli did not fall into a deep sleep as they anticipated so results were from awake and dosing screenings. Last night she had another seizure while the nurse was in the room. Today the doctor said they may order a video EEG which would have her hooked to a monitor for 24 hrs and a video on her to compare her behavior to the readouts. Her episodes are always late afternoon/early evening after activity, so this is another reason to want to do a 24 hr monitor. Her fever broke around 4 this morning, but she is starting to show signs of creeping back up. They want her fever free for 24 hrs. before discharging and are concerned at how it spikes, goes away, spikes, goes away. They are considering calling in the infectious disease group because initial testings aren't picking up anything and they think there's a possibility that a bacteria could be hiding out somewhere in the body.
Alli is well occupied with fun by the child life program here and their playroom. She does not have a good appetite right now though, and we're having to pretty much make her eat what she does take in. The hubby and I are entertained by their pool table (and our lack of skill!) but now have to go out for food because their food voucher program has stopped and they don't do courtesy trays like back home. Usually the hubby goes out & grabs something for us while I hang out with Alli. The staff here is wonderful and has offered many times to sit with Alli while we "take a break", but you know me, I can't make myself leave her. I know some of you are wanting to visit, but it is advised against until this fever source is tracked down.
Thank you again for your continued prayers and support. God is still good and carries as during this time. I must admit, just being away and getting to sit down and watch tv or play a game with my hubby has been a very welcomed return. Most of you know that kind of time has been very little since the start of ginhouse. So see, God sends little treats amongst our trials, and He knows our hearts desires and sends us little love notes amidst our tribulations to lift our spirits and show us that He is near. I love God's tact!

No comments:

Custom Search