Alli update Thur night

More blood work was done today. No fever since lunch time so that's a great improvement. Alli had a real "touch me not" episode around supper time which was hard for the hubby and I.
Tomorrow morning she'll be rewired (like the last picture post) for a 24 hr. EEG to run in hopes of catching one of her episodes. It will run all tomorrow and then through the night with some sleep depriving again. There are a few variables that are a down side with this test. One is that we can't leave the room for 24 hrs. because of the video system that will be in place to record her behavior along with the EEG graphing. Another con is that by being in the room all that time, her activity level will be limited, and all of her episodes have followed a period of physical activity. Because of this, we still may not catch one of them and go home on assumptions. If that's the case, then we're supposed to carry around a video camera, recording her, trying to catch the next one so the neurologist can see one for himself. This really makes us hope the 24 hr EEG will catch one so we can have their data to confirm what we've been experiencing. We had some medical personnel witness last night's episode, but not the neurologist. He says there is a chance that this isn't seizures, but an onset of pain from the injury that she can't handle and then goes into a temp. shutdown, looking like a seizure. It was called a vega response, I think (I may not be remembering that term correctly). Anyway, that's why he really wants to catch her on video and EEG together to try to prove which is causing the seizure behavior, whether it be actual seizure or intense pain that her brain can't handle. Quite honestly, they don't sound much different to me.
Anyway, I was reminded tonight by the neurosurgeon (notice we have a neurologist and a neurosurgeon, and they are quite different) that if the EEG doesn't show a seizure, that only means that she's not having a seizure during the test. Proving it isn't necessarily our purpose here. That would just present proof of what we already knew, but what we as Christians have to remember that our answers come from God. All this testing may not give us any concrete evidence to go on because of all the variables. But God will give us answers, in His timing, and the only variable is our faith-our hope and trust in Him.
Good night and God Bless. Pray that we all handle being confined to this room all day okay, especially Alli who's gotten used to going to see the fishies each day since we've been here. Also, her sleep tonight has been quite restless. Hubby on the other hand is snoozing just like at home- in the chair, feet propped up, computer in lap, head back, mouth open. I'll probably receive some kind of punking for saying that later! Too bad I didn't have a picture...